Challenges of providing home care for a family member with serious chronic mental illness: A qualitative enquiry

Kebogile Elizabeth Mokwena*, Amukelane Ngoveni

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

11 Citations (Scopus)

Abstract

The South African Mental Health Act of 2002 advocates the de-institutionalization of treatment of patients with mental disorders, so that the mental health care users or patients are treated in their communities. Although this approach is often used to discharge patients from hospital, no feasibility assessments are conducted to ascertain adequate care for these patients. The objective of the study was to explore the experiences of family members who provide home care for patients with serious mental disorders. A qualitative explorative design was used to interview 20 primary caregivers whose family members were readmitted to a public psychiatric hospital in Pretoria. Data were analysed using NVivo version 11. The findings are that caring for patients with serious mental illness at home is difficult, sometimes unbearable, because the families have to deal with violence perpetrated by the patients, safety concerns, financial difficulties and emotional turmoil, and wish that the patients would be kept in institutions. The absence of required skills and resources to care for the mentally ill at home exposes the patients and their families to emotional, financial and social difficulties, and results in unfavourable outcomes for both the patients and their families.

Original languageEnglish
Article number8440
Pages (from-to)1-11
Number of pages11
JournalInternational Journal of Environmental Research and Public Health
Volume17
Issue number22
DOIs
Publication statusPublished - 2 Nov 2020

Keywords

  • Caregivers
  • Families
  • Homecare
  • Mental disorders
  • South African Mental Health Act of 2002

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